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Protecting Astronaut Medical Privacy: Review of Presentations and Publications for AttributabilityRetrospective research and medical data collected on astronauts can be a valuable resource for researchers. This data can be requested from two separate NASA Archives. The Lifetime Surveillance of Astronaut Health (LSAH) holds astronaut medical data, and the Life Sciences Data Archive (LSDA) holds research data. One condition of use of astronaut research and medical data is the requirement that all abstracts, publications and presentations using this data must be reviewed for attributability. All final versions of abstracts, presentations, posters, and manuscripts must be reviewed by LSDA/LSAH prior to submission to a conference, journal, or other entities outside the Principal Investigator (PI) laboratory [including the NASA Export Control Document Availability Authorization (DAA) system]. If material undergoes multiple revisions (e.g., journal editor comments), the new versions must also be reviewed by LSDA/LSAH prior to re-submission to the journal. The purpose of this review is to ensure that no personally identifiable information (PII) is included in materials that are presented in a public venue or posted to the public domain. The procedures for submitting materials for review will be outlined. The process that LSAH/LSDA follows for assessing attributability will be presented. Characteristics and parameter combinations that often prompt attributability concerns will be identified. A published case report for a National Football League (NFL) player will be used to demonstrate how, in a population of public interest, a combination of information can result in inadvertent release of private or sensitive information.
Document ID
20170009498
Acquisition Source
Johnson Space Center
Document Type
Conference Paper
Authors
Wear, M. L. (KBRwyle Science, Technology and Engineering Houston, TX, United States)
Charvat, J. M. (KBRwyle Science, Technology and Engineering Houston, TX, United States)
Lee, L. R. (KBRwyle Science, Technology and Engineering Houston, TX, United States)
Babiak-Vazquez, A. (KBRwyle Science, Technology and Engineering Houston, TX, United States)
Mason, S. S. (MEI Technologies, Inc. Houston, TX, United States)
Van Baalen, M. (NASA Johnson Space Center Houston, TX, United States)
Date Acquired
October 4, 2017
Publication Date
January 22, 2018
Subject Category
Administration And Management
Aerospace Medicine
Report/Patent Number
JSC-CN-40645
Meeting Information
Meeting: 2018 NASA Human Research Program Investigators'' Workshop (HRP IWS 2018)
Location: Galveston, TX
Country: United States
Start Date: January 22, 2018
End Date: January 25, 2018
Sponsors: National Space Biomedical Research Inst. (NSBRI), NASA Johnson Space Center
Distribution Limits
Public
Copyright
Public Use Permitted.

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